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Why Donate Now?
We have spent over $70,000 out-of-pocket paying the medical bills to keep our 4-year
old daughter, Anne, alive and to help her get well. We have health insurance,
however, our HMO has refused to pay our medical bills to keep Anne alive. Anne’s
medical treatment is ACCME credentialed (Accreditation Council for Continuing
Medical Education) and has been ACCME credentialed for over 34 years. The
treatment Anne receives has been done in the U.S. by M.D.’s for over 100-150 years.
We have spent over $70,000 out-of-pocket paying the medical bills to keep our 4-year
old daughter, Anne, alive and to help her get well. We have health insurance,
however, our HMO has refused to pay our medical bills to keep Anne alive. Anne’s
medical treatment is ACCME credentialed (Accreditation Council for Continuing
Medical Education) and has been ACCME credentialed for over 34 years. The
treatment Anne receives has been done in the U.S. by M.D.’s for over 100-150 years.
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We have repeatedly petitioned the NYS Attorney General’s office, the NYS
Department of Health, and the NYS Insurance Department for help with this specific
matter. We have filed numerous written complaints including a child welfare
endangerment complaint in January 2006. Anne’s Mother, Lisa Lundy, also met
personally with representatives of the NYS Attorney General’s office, the NYS
Department of Health, and the NYS Insurance Department. None of these actions
have resulted in our insurance provider being required to cover Anne’s life-saving
medical treatments.
We have been unable to find an attorney to litigate our case because we have no
money left, and New York State laws do not provide attorney fees, fines, damages,
and penalties for litigation. What that means is that it is next to impossible to find an
attorney to take health care cases unless you can pay attorney fees up-front,
because there is no way an attorney can get paid if he/she wins a case. It has been
estimated by top legal scholars that to litigate a case like ours would cost between
one to two million dollars.
In addition to petitioning the NYS AG, NYS DOI, and NYS DOH for help in enforcement of
the health care, consumer protection and antitrust/monopoly laws, we have also
sought help from the New York State Assembly and the New York State Senate. The
Committee Chairpersons for the Committees on Health, Insurance, Consumer
Protection and Government Oversight and Analysis/Investigation/Operations have all
received a copy of the Child Welfare Endangerment Complaint that we filed in
January 2006. The committees have all been non-responsive. Petitioning the three
Federal Agencies who have jurisdiction over health care matters has also produced
no results.
If Anne were not receiving the medical treatments that she gets, Anne would be
having seizures, on a feeding tube, developmentally delayed, and in the hospital or
ER every month which would cost about $6,000 plus per month. Yet, our HMO is
unwilling to pay half of that, or $2,500 to $3,000 a month to have Anne survive and be
on the road to recovery. Our daughter is the acid test for health care and New York
State’s delivery of the health care system, and it has failed at every corner.
We took Anne off of the very successful treatments in June 2005 because we were
financially strapped and we were too proud to accept financial help. During the six
month period where Anne was off of the successful treatments, we went to Canada
and did a highly recommended alternative treatment. We spent a few weeks in
Canada doing that and then did traditional allergy medications like Pulmicort
Respules, Singular, Albuterol, etc. Anne became allergic to all of the traditional allergy
medications within 3-4 weeks which included having an anaphylactic reaction while
doing the Pulmicort Respules in the nebulizer. Anne’s body started breaking out in
deep, bleeding eczema which is pictured above. The eczema spread to her back,
stomach and face, and we were on a downward spiral. In the absence of receiving
the highly effective treatments, Anne became 100 times more allergic to the allergens.
This has been a huge setback for Anne and for us financially. The results of removing
Anne from the treatment were more devastating than a bloody picture can show.
Anne bears scar tissue on the backs of both of her legs from the deep bleeding sores
that she endured while off of the safe, effective treatment that had been working for
her so well. We were forced to go back to the one treatment that had worked for
Anne because there was nothing left that was proven, safe and effective in the
management of her condition.
We are proud people who are trying to make it against terrible odds. We are in need
of help financially, and legally. If you can help us by donating now, we would be
deeply appreciative.
Department of Health, and the NYS Insurance Department for help with this specific
matter. We have filed numerous written complaints including a child welfare
endangerment complaint in January 2006. Anne’s Mother, Lisa Lundy, also met
personally with representatives of the NYS Attorney General’s office, the NYS
Department of Health, and the NYS Insurance Department. None of these actions
have resulted in our insurance provider being required to cover Anne’s life-saving
medical treatments.
We have been unable to find an attorney to litigate our case because we have no
money left, and New York State laws do not provide attorney fees, fines, damages,
and penalties for litigation. What that means is that it is next to impossible to find an
attorney to take health care cases unless you can pay attorney fees up-front,
because there is no way an attorney can get paid if he/she wins a case. It has been
estimated by top legal scholars that to litigate a case like ours would cost between
one to two million dollars.
In addition to petitioning the NYS AG, NYS DOI, and NYS DOH for help in enforcement of
the health care, consumer protection and antitrust/monopoly laws, we have also
sought help from the New York State Assembly and the New York State Senate. The
Committee Chairpersons for the Committees on Health, Insurance, Consumer
Protection and Government Oversight and Analysis/Investigation/Operations have all
received a copy of the Child Welfare Endangerment Complaint that we filed in
January 2006. The committees have all been non-responsive. Petitioning the three
Federal Agencies who have jurisdiction over health care matters has also produced
no results.
If Anne were not receiving the medical treatments that she gets, Anne would be
having seizures, on a feeding tube, developmentally delayed, and in the hospital or
ER every month which would cost about $6,000 plus per month. Yet, our HMO is
unwilling to pay half of that, or $2,500 to $3,000 a month to have Anne survive and be
on the road to recovery. Our daughter is the acid test for health care and New York
State’s delivery of the health care system, and it has failed at every corner.
We took Anne off of the very successful treatments in June 2005 because we were
financially strapped and we were too proud to accept financial help. During the six
month period where Anne was off of the successful treatments, we went to Canada
and did a highly recommended alternative treatment. We spent a few weeks in
Canada doing that and then did traditional allergy medications like Pulmicort
Respules, Singular, Albuterol, etc. Anne became allergic to all of the traditional allergy
medications within 3-4 weeks which included having an anaphylactic reaction while
doing the Pulmicort Respules in the nebulizer. Anne’s body started breaking out in
deep, bleeding eczema which is pictured above. The eczema spread to her back,
stomach and face, and we were on a downward spiral. In the absence of receiving
the highly effective treatments, Anne became 100 times more allergic to the allergens.
This has been a huge setback for Anne and for us financially. The results of removing
Anne from the treatment were more devastating than a bloody picture can show.
Anne bears scar tissue on the backs of both of her legs from the deep bleeding sores
that she endured while off of the safe, effective treatment that had been working for
her so well. We were forced to go back to the one treatment that had worked for
Anne because there was nothing left that was proven, safe and effective in the
management of her condition.
We are proud people who are trying to make it against terrible odds. We are in need
of help financially, and legally. If you can help us by donating now, we would be
deeply appreciative.
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